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Unrest: Women, Resilience and the Disease Medicine Forgot

Brian Byrd
Program Officer
New York State Health Foundation

Jennifer, a Harvard Ph.D. student, was signing a check at a restaurant when she found she could not write her own name. When doctors insisted her condition was psychosomatic, she documented her own story and the stories of four other families struggling with Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome, the world's most prevalent orphan disease. Millions suffer from this disease, and 80% of those affected are women. This film generates understanding for patient and caregiver experiences, raises the profile of the disease and the role of gender misdiagnosis, and seeks to influence policymakers to increase funding for research.


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